Resources

Lou on his Sea Legs

I chose this picture of my dad for the “Resources” page because the sea is the one place in the entire universe that brings comfort and peace to his heart. I wanted to create a page to share links to some of the places that do the same for my heart – to other writers and caregivers whose stories bring companionship, to organizations advocating for Alzheimer’s and dementia patients whose works bring solidarity, to services and grant programs whose offerings bring respite. I hope you find something here that can be a resource for you ♥

Articles I Have Been Interviewed For

New York Times: Living With the Parents I’m Losing to Alzheimer’s     I was interviewed for this piece by Times blogger and author of When The Time Comes, Paula Span. It is a condensed 1st person “as told to” account of my experience caring for my parents

Women’s Health Magazine: What It’s Like To Become Your Mother’s Caregiver     I was interviewed for this article which appeared in Women’s Health Magazine

Neurology Now: Anger Management in Neurological Conditions     I was interviewed for this article which appeared in a patient resource magazine published by Neurology Now

US News & World Report: Caring for a Parent with Alzheimer’s Disease     I was interviewed for this article which appeared in the US News August Health section

 

Blogs I Follow

How to Feed a Senior    A food-focused guide for seniors struggling with Alzheimer’s and dementia and all-around awesome caregiver blog by my friend Ashley

Dementia Diaries: A Journey with Dementia   A caregivers blog & resource site particularly for those living with and caring for one with frontotemporal lobe dementia (FTD)

Alzheimer’s Journey    Blog of Brittany Gelineau Murray whose mother is living with early-onset Alzheimer’s disease

Kathryn Harrison Art    Art, illustrations, and storytelling focused on the Alzheimer’s patient & caregiver

Blog of Lindsey Biggs    Lindsey writes about her experience caring for her mother who she lost to Alzheimer’s disease.

 

National Advocacy/Support Organizations for Alzheimer’s & Dementia Caregivers (headquartered in the US)

Hilarity for Charity   Non-profit founded by actor Seth Rogen and his wife Lauren Miller Rogen. Offer respite grants for those caring for loved ones living with Alzheimer’s disease.

The Alzheimer’s Association   24-7 helpline for people touched by Alzheimer’s and related dementias plus a host of other resources including support groups.

Caring Across Generations   Advocacy organization dedicated to transforming the way we care and the way we view care.

The Caregiver Space   Online caregiver support groups, stories, and other inspirations.

Dementia Care   A Pinterest board where I’ve collected links to essays & articles focused on dementia care

 

NJ State Supports for Caregivers

The Tender   A beloved non-profit adult day program with caregiver support groups. My dad has been attending for nearly 4 years! (local to Mt Laurel, NJ)

The JACC Program   Income-based program providing services for persons at risk of placement in a nursing facility.

NJ State Respite Care Program   Respite program to help keep loved ones at home and out of nursing care facilities.

Alzheimer’s Adult Day Services Program   Partially subsidizes adult day care for  persons living with Alzheimer’s/dementia.