Hi. I am Elizabeth Grace Wolf – eldest daughter of Anna (aka Nancy) and Louis Brood. When I was in my twenties, both my parents were diagnosed with Alzheimer’s disease within 4 months of each other. That was 10 years ago and I have been caring for them ever since in the very home where they raised me, my sister Katie, and my brother Garrett. This disease slowly and horrifically ravaged our mother’s mind and body to death, and she left this world on February 10, 2017. We are blessed and grateful to continue caring for our father at home. Throughout so many difficult years and in the face of his own great losses, he has remained sweet, gracious, and joyful. We live in bittersweet heartache.
In June of 2018, I returned to work and school after many years living as my parents’ full-time caregiver. I want to spend the rest of my life advocating on behalf of people living with advanced dementia and to serve as a support for family caregivers who are walking besides loved ones with terminal illness as they take their last steps through this world.
My husband Casey and I created this site as a place for me to explore care life and care work with the many contemplations it evokes. Upsidedowndaughter.com is a patchwork of vignettes, reflections, images, interviews, advocacy, and whatever else has become relevant to me these last years. This is what I eat, sleep, breathe, and lie awake to. I thank you with all my heart for being here to share in the experience.